"Your first breath, took mine away."
November - thankful for my family and all my blessings. Celebrated our sweet Noah's birthday.
December - Christmas is my favorite time of year. This year had its unplanned moments, but still enjoyed my family and all God has blessed us with.
So I haven't blogged much.
Our sweet littlest one has kept us busy.
Cameron has a fever syndrome called pfapa.
We are trying to get to the right doctor for an actual diagnosis, but all symptoms point to it.
We spent a very scary night in the ER recently and I have learned how important it is to be your child's advocate.
Cameron has been having fevers since March.
He has had a ton of bloodwork done as well.
We went to an infectious disease doctor for more info. On our 2nd visit with her, Cam was on his 6th day of a fever. She sent us for bloodwork.
A couple of hours after being home, the doctor called us and told us we needed to pack a bag and go to the Children's Hospital downtown.
I couldn't think, I couldn't breathe.
I gave the phone to my husband.
We sent out many prayer requests and headed downtown.
Once there, we quickly found out the doctors there had never heard of pfapa.
They brought up more bloodwork, doing a heart ultrasound, doing a spinal tap, looking at juvenile arthritis, looking at multiple sclerosis.
All scary stuff.
I know everyone's prayers gave me strength and courage to speak up.
I told the first doctor about pfapa. I took out my "Cameron diary."
Four different doctors looked at Cam. I believe they did some quick research on pfapa because they started looking for symptoms. They saw red tonsils and a sore in his mouth.
Signs of pfapa.
I told them he needed to see a rheumatologist. They called her and after telling her everything I had said and what they had observed, she told them it sounded like pfapa.
She wanted to see us outpatient.
One doctor came in and told Tom and I we were very intelligent and knowledgeable about what is going on with our son.
It had been over 4 hours at the hospital, but in the end our son had not been put through any unnecessary tests.
I was again thankful and knew everyone's prayers had helped these doctors stop and listen to a mother.
We were discharged.
Next day, Cam had a low fever all day, but didn't need any medication.
By the following day, fever was gone.
Now we wait for the rheumatologist to call and fit us in for an appointment.
